VOICES Bereavement survey 2023

Have you recently lost a loved one? 

It is important that we understand the experience of those who have sadly died. As a carer or family member we would really welcome your feedback, so we can take your loved one's thoughts and experiences into account. Your views are, therefore, important to us. This questionnaire is about the care and services received by you and your friend/relative in the last months of their life.

This questionnaire uses the questions from the Views of Informal Carers – Evaluation of Services (VOICES). VOICES is a questionnaire, which up until 2015, was conducted nationally by the Department of Health and Social Care. The questionnaire explores all aspects of an individual's care before they died and how you were supported after their death. All provided answers remain anonymous and will never identify you or your family to your community care team or GP practice.
The survey should take between 10 - 35 minutes to complete, depending on your experience.

Closing date: 31st August 2023

HWLincs is working with NHS Lincolnshire to improve the experiences of patients and those around them as they receive end of life care. By telling us your story, our health and care services can positively shape the end of life services within the county.

What difference did the Voices 2022 feedback make? Your feedback will be used by NHS Lincolnshire to improve the services they provide. Following previous feedback NHS Lincolnshire implemented:

  • Additional training specific to palliative and end of life care
  • Easier access to specialist clinicians for advice and help
  • More widely available and upgraded the information available through a dedicated website (www.eolc.co.uk

PEOL Co-production Group Invite

A Lincolnshire Palliative & End of Life Co-production Group is facilitated by Every-One.

Who are we looking for?   

We are looking for people who may be experiencing a difficult time but by being part of this, you will make a difference to others.  We are also keen to work with unpaid family carers who have experienced the expected death of a loved-one. No previous experience of co-production is necessary—you will be supported throughout. You will have a positive attitude to working with people to make things better for others.

What is Co-production?   

Co-production brings people with experience of using services together with those who deliver them, to work together to design new things and make things better for everyone. You will be co-producing with a range of people from services across health and social care, which will include community services, hospitals and hospices.   

What is palliative care?   

Palliative care aims to improve the quality of life for people and their families who are facing problems associated with life threatening illness. Palliative care uses a person-centred team approach to support people’s physical, psychological, social, and spiritual needs to help them to live as well as possible until death.   

What will you be doing?    

We will support you to have the right information to confidently take part and to work with services in Lincolnshire to shape them for the better. This may include:  Sharing your personal experience of services with others. Working with peers and staff to design services. Making recommendations for improvements that will be listened to. Developing your skills, knowledge and confidence to take part.  

What can you expect from us?     

We will: 

  • Work with you to build your skills, knowledge and confidence to take part. 
  • Listen, co-produce with you and do what we have agreed to do. 
  • Support you if you experience emotional needs as a result of being part of this work. 
  • Cover your travel expenses and refreshments provided when appropriate. 

See the contact details and how to join on the poster below:

New Policy

Available in ReSPECT page of the professional section.

ReSPECT journey

We have also shared three ReSPECT journey videos (two of them involve people with learning disabilities) published on the Resus website - available on both professional and public sections of this website under ReSPECT.

For Information 8/11/22

Please be advised that St Barnabas Hospice Lincolnshire have now closed all of their NHS.Net accounts and will only be using their St Barnabas Microsoft outlook accounts.

Welcome to Lincolnshire Palliative and End of Life website. 

If you have not visited the website before, this is how to navigate it. On the home page, you will see there are 2 areas: 'Professional' and 'Public'. As you click into the area you choose, you will be greeted with a list of contents. You may wish to browse this or you may wish to narrow your search. You can use the drop down boxes where it says select 'Topic' to select an area of interest, or you can use the key word search or the A-Z to find what you are looking for. 

This site continues to be developed with new resources added regularly.